The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers.

The group is organised by people with the condition and their families.

Aims

The relief of sickness and the protection and preservation of the health of persons affected by Gorlin syndrome and any related condition and their families and carers.
The advancement of the education of the medical profession and the general public into Gorlin syndrome and its implications for the family.
The promotion of research into the causes, effects, treatment and management of Gorlin syndrome and to disseminate the useful results thereof.

Information and advice is available via the website, booklet, newsletter, and an annual patient conference. The group is supported by a number of medical advisors.

Please contact for further information:

Gorlin Syndrome Group
43 Tor View
Launceston
Cornwall
PL15 7HB