Patient Support Groups

For enquiries in the United Kingdom contact the Pemphigus Vulgaris Network.

The Pemphigus Vulgaris Network offers general support for all types of pemphigus and:

• provides a forum for people living with pemphigus and those personally or professionally concerned with it.
• gives people an opportunity to contact other people with pemphigus.
• helps people find information they need.

We also support people with mucous membrane pemphigoid (including ocular pemphigoid), also known as cicatricial pemphigoid.

Contact Details:

Write to:
Pemphigus Vulgaris Network
Flat C
26 St Germans Road,
London
SE23 1RJ

(Please note that the group has no funding so please enclose a stamped addressed envelope).

Telephone:
0208 690 6462 (preferably between 8.30 and 10 in the morning).

(Please note that the group has no funding so unfortunately we cannot return missed phone calls).

Website:
http://www.pemphigus.org.uk

The PV Network is on the British Association of Dermatologists' register of support groups and is an associate of the International Pemphigus Foundation in the USA.

For enquiries in the rest of the world contact the International Pemphigus.

Foundation:

The International Pemphigus Foundation is a support group for:

• all forms of pemphigus.
• Bullous and Cicatricial Pemphigoid.

Write to:
International Pemphigus Foundation
1540 River Park Drive
Suite 208
Sacramento
CA 95815
USA

Telephone:
001-916-922-1298

Fax:
001-916-922-1458

E-mail:
pemphigus@pemphigus.org

Website:
http://www.pemphigus.org

Suggestions for further reading

Websites
There are many useful suggestions for further reading on the International Pemphigus Foundation website (www.pemphigus.org) and The PV Network has its own website http://www.pemphigus.org.uk

Books
A good book to read on prednisolone and diet is 'Coping with Prednisone' by Eugenia Zukerman and Julie R. Ingelfinger, MD. ISBN 0-312-19570-2.

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