British Association of Dermatologists
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Introduction
Glossary
What is hidradenitis suppurativa (HS)?
What areas of the body are affected?
What does HS look like?
Who tends to have HS?
What causes HS?
Is HS hereditary?
Is HS catching?
Is HS serious?
Does anything make HS worse?
Will HS go away?
How will HS be diagnosed?
How can HS be treated?
Are there any complications with HS?
How can I help myself?
What sort of dressings should I use?
Will daily life be affected by HS?
Will having HS affect pregnancy or giving birth?
I am about to see a healthcare professional; what do I ask them
Other frequently asked questions
What do I do next?
Where can I get more information?
References
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>> I am about to see a healthcare professional; what do I ask them?

The questions you will have will depend on whether you have had HS for a long time or you have just discovered that you have the disease. But you might find it useful to ask the following sorts of questions:

  • Do I have HS?
  • Will I need to have any tests to confirm the diagnosis?
  • Do I have severe disease?
  • What is the likely prognosis for me?
  • What are the treatment options and what do you recommend as the first-line treatment for me? (Remember not all treatments will work in all people).
  • What should I expect this treatment to do? For instance, will it reduce the frequency or severity of the attacks, reduce the amount of discharge, reduce the pain or even give me complete disease remission?
  • How long will we persist with this treatment before deciding if it has been helpful or not?
  • What are the side-effects of this treatment and how does this compare with other treatments?
  • Are my children at risk of getting HS?

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