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Patient Support Groups

The following is an alphabetical list of national, regional and local patient support groups for those suffering from skin disease. They are often run by volunteers who suffer from the disease themselves, and many patients find it enormously valuable to have such contact with others both for support and for practical help. They also often support research efforts. If no support group exists for the disease in which you are involved, perhaps it may be worth considering starting up such a group.

Click here  to download a poster of Dermatology Patient Support Groups and their contact details

Melanoma Action & Support Scotland (MASScot)

Contact
Leigh Smith, MBE, TD, RGN
Chair
Melanoma Action & Support Scotland
Skin Cancer Charity

Please send all mail to:

MASScot
208 Clyde Street
Glasgow
G1 4JY

Tel: 01412219878
Tel (mob): 0773 823 1260
Email: leigh@masscot.org.uk
Web: www.masscot.org.uk

Scottish Charity Incorporated Organization Registration Number SCIO 040286

Nottingham Support Group for carers of children with eczema

Aims  
The Nottingham Support Group for Carers of Children with Eczema (NSGCCE) is made up of carers of children with eczema and healthcare professionals. The information and support we offer is mainly web and electronic media based, and we offer this support without geographic boundaries.
There are around thirty patient information leaflets freely available on our website, which are also online streamed audio as well as downloadable documents and mp3 format.

NSGCCE has direct links to the senior clinicians and clinical trials teams in Nottingham.
Though unable to give specific advice, we can get very detailed answers to questions raised on the “Ask the Experts” service.

We disseminate information via our Blog, Email Alert Service and RSS Newsfeed as well as the website. Our blog also carries real life stories submitted by ordinary people about what they did to control their eczema.

On our website are links to publications that report on eczema related issues and where possible the site delivers video and audio podcasts made by the team and others if they relate directly to our cause. 

We have a thriving Twitter community hosted at @eczemasupport.
There are comprehensive links on our website, one for professionals and one for lay people.
The site is well visited. (Visits for 118 different nations with an average of 103 visits per day during 2010).

Awards Available
The NSGCCE operates on an entirely voluntary basis and therefore does not have any funds to award. However, we can give PPI feedback for research applications.

Contact
Amanda Roberts
18 Marlborough Road
Nottingham
NG5 4FG
Tel: 0115 926 9996
Email: enquiry@nottinghameczema.org.uk
Website: www.nottinghameczema.org.uk

Skin Care Cymru

Skin Care Cymru is an organisation that represents the interests of people in Wales who suffer from a skin condition. We seek improvements in care for people affected by any skin condition and to educate and inform relevant professional bodies, the public and media about the needs of people affected by such conditions.
We seek to support both those with skin conditions and their carers.

Aims 
Provide an effective voice for those who suffer from skin conditions in Wales.
Raise the profile and public awareness of dermatology.
Bring the concerns and aspirations of skin care patients in Wales to the attention of the Welsh Assembly, health policy makers, government advisory bodies, health professionals and the general public.
Work to remove the stigma associated with skin conditions through education and media campaigns.
Bring together skin care patients, both individually and in existing specialist organisations, to improve
the lives of those with skin conditions.

Contact
Skin Care Cymru
PO Box 612
Swansea
SA1 9GH
Tel: 07917 572 895
Email: info@skincarecymru.org
Web: www.skincarecymru.org
Registered Charity No. 1131832

Wessex Cancer Trust (Skin Cancer Information Network)

Aims
Wessex Cancer Trust offers a counselling service to those living in the Wessex area. It aims to be of value to patients and their families, health professionals. teachers and others involved in education or prevention of skin cancer. It produces leaflets and information sheets on various types of skin cancer and on sun protection strategies. It has a professional nurse network of voluntary nursing contacts offering psycho-social support for patients and their families living with melanoma. 

Contact
Wessex Cancer Trust
Suite 9a Fairways House
Mount Pleasant Road
Southampton
SO14 0QB

Tel: (01722) 415071
Fax: (01722) 415071
Web: www.wessexcancer.org
Email: wct@wessexcancer.org.uk


 

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