Patient Information Leaflets (PILs)
These Patient Information Leaflets (PILs) are specially written by the British Association of Dermatologists (BAD).
The BAD has been awarded The Information Standard certification for the process it employs to develop information products aimed at the general public, which include PILs, Sun Awareness Campaign materials, and other information products.
The BAD shall hold responsibility for the accuracy of the information published, and neither the scheme operator nor the scheme owner shall have any responsibility for costs, losses, or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on the website on behalf of the BAD.
There are thousands of different skin complaints, therefore, the focus of the British Association of Dermatologists' PILs production is on the most common, rarest or debilitating skin conditions.
The offer to provide details of source materials used to inform the British Association of Dermatologists' PILs is for instances where the advice provided in the PILs does not reflect local practice and therefore evidence supporting said advice needs to be produced. It is not an offer to conduct literature searches or supply bibilographic materials for your own research.
Junctional epidermolysis bullosa
Junctional epidermolysis bullosa (JEB) is a rare inherited (genetic) skin disorder. It is different from the other forms of epidermolysis bullosa (EB), which include epidermolysis bullosa simplex, dystrophic epidermolysis bullosa and Kindler Syndrome. Individuals who have JEB will not develop one of the other types of epidermolysis bullosa at a later date.
The skin of those who have JEB is fragile and minor everyday knocks and friction cause blisters or raw areas. There are 3 main types of JEB (Herlitz JEB, Non-Herlitz JEB and JEB with pyloric atresia). JEB varies in severity, from relatively mild disease with normal lifespan to the most severe form, Herlitz JEB, in which babies may not live beyond their first birthday. JEB is not an infection, it is not contagious and it is not due to an allergy.