What are the aims of this leaflet?
This leaflet has been written to help you understand folliculitis decalvans. It tells you what this condition is, what it is caused by, what can be done about it, and where you can find out more about it.
What is folliculitis decalvans?
Folliculitis decalvans is a rare chronic (long term) inflammatory condition of the scalp. Very rarely it can affect other hair-bearing skin such as beard, armpits, pubic area and legs. The prolonged inflammation that usually occurs leads to scarring. Folliculitis decalvans is derived from Latin and means inflammation of the hair root associated with hair loss.
Folliculitis decalvans is not contagious and is not a type of skin cancer.
What causes folliculitis decalvans?
The exact cause of folliculitis decalvans is unknown but it may be due to an abnormal chronic inflammatory reaction to a bacterium called Staphylococcus aureus. Staphylococcus aureus is often present on healthy skin.
Is folliculitis decalvans hereditary?
Folliculitis is not usually hereditary, although there are rare reports of it affecting members of the same family.
What are the symptoms of folliculitis decalvans?
Folliculitis decalvans can cause an area of the scalp to become itchy and feel tight, and painful. Sometimes no discomfort is felt at all.
What does folliculitis decalvans look like?
The affected area of the scalp becomes red and swollen and may form scaly areas, scabs and crusts. Pus filled spots may develop, most commonly on the back of the head, but any other part of the scalp can be involved.
Loss of hair and scarring may develop. A characteristic feature is that several hairs (‘tufts’) exit from the same hair follicle on the scalp skin. This is called ‘tufting’ and looks similar to dolls-hair or bristles of a tooth brush. Bald patches may develop and increase in size. The medical term for permanent hair-loss due to scarring is ‘cicatricial (latin for scarring) alopecia’.
How is folliculitis decalvans diagnosed?
The diagnosis is often made by a dermatologist after examining your skin.
A skin swab may be taken with a cotton wool bud and sent to the laboratory to check for bacterial infection (germs). A bacterial infection with Staphylococcus aureus is often found. Because a fungal infection (ringworm) can sometimes look similar to folliculitis decalvans your doctor may also send scrapings from the skin or plucked hairs to test for fungal infection.
Often a skin sample (skin biopsy) may be taken and checked under the microscope to confirm the diagnosis. This test requires a local anaesthetic injection and stitches to close the wound and may lead to a scar.
Can folliculitis decalvans be cured?
There are many different treatments available to control the inflammation of folliculitis decalvans, but unfortunately no cure has been found. Scarring, if it develops, is permanent. Treatment is aimed at reducing inflammation and preventing scarring.
How can folliculitis decalvans be treated?
Treatment is usually a combination of a medicated shampoo, anti-inflammatory and antibacterial scalp solutions or creams and oral antibiotics, including combinations of oral antibiotics. Steroid cream/lotion/ointment applications are often used. There is no specific treatment licensed for folliculitis decalvans, and because the condition is so rare, no clinical trials exist that prove the benefit of any particular therapy over another. The majority of treatments have only been tested in small numbers of patients or described in case reports.
The folliculitis may eventually stop and burn itself out but patients may continue to experience flares for many months or years. Folliculitis decalvans is often a condition that requires on-going long-term treatment from your doctor.
Self care (What can I do?)
Using an antiseptic shampoo may reduce the amount of germs on the scalp. A shampoo containing tar can also reduce the scaling of the scalp and improve the condition.
Where can I get more information about folliculitis decalvans?
Web links to detailed leaflets:
Tel: 0800 101 7025
For details of source materials used please contact the Clinical Standards Unit (firstname.lastname@example.org).
This leaflet aims to provide accurate information about the subject and is a consensus of the views held by representatives of the British Association of Dermatologists: individual patient circumstances may differ, which might alter both the advice and course of therapy given to you by your doctor.
This leaflet has been assessed for readability by the British Association of Dermatologists’ Patient Information Lay Review Panel
BRITISH ASSOCIATION OF DERMATOLOGISTS
PATIENT INFORMATION LEAFLET
PRODUCED SEPTEMBER 2012
UPDATED NOVEMBER 2015
REVIEW DATE NOVEMBER 2018