Patient Information Leaflets (PILs)
These Patient Information Leaflets (PILs) are specially written by the British Association of Dermatologists (BAD).
The BAD has been awarded The Information Standard certification for the process it employs to develop information products aimed at the general public, which include PILs, Sun Awareness Campaign materials, and other information products.
The BAD shall hold responsibility for the accuracy of the information published, and neither the scheme operator nor the scheme owner shall have any responsibility for costs, losses, or direct or indirect damages or costs arising from inaccuracy of information or omissions in information published on the website on behalf of the BAD.
There are thousands of different skin complaints, therefore, the focus of the British Association of Dermatologists' PILs production is on the most common, rarest or debilitating skin conditions.
The offer to provide details of source materials used to inform the British Association of Dermatologists' PILs is for instances where the advice provided in the PILs does not reflect local practice and therefore evidence supporting said advice needs to be produced. It is not an offer to conduct literature searches or supply bibilographic materials for your own research.
Dystrophic epidermolysis bullosa
Dystrophic epidermolysis bullosa (DEB) is a rare inherited skin disorder. The skin of people with DEB is more fragile than normal. Minor injury causes blisters or ulcers that may be slow to heal and often leave scars. DEB can be mild, but it can also be severe, affecting the mouth, oesophagus (gullet), eyes and nails in addition to the skin.
Dystrophic epidermolysis bullosa (DEB) is divided into two main types depending on how it is inherited: recessive dystrophic epidermolysis bullosa (RDEB) and dominant dystrophic epidermolysis bullosa (DDEB)..
There are other forms of inherited epidermolysis bullosa (EB), including epidermolysis bullosa simplex, junctional epidermolysis bullosa and Kindler Syndrome. These are all distinct skin diseases so people who have DEB do not develop other types of epidermolysis bullosa at a later date.